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Saturday, May 30, 2009

I am the child

I Am the Child



I am the child who cannot talk.
You often pity me, I see it in your eyes.
You wonder how much I am aware of - I see that as well.
I am aware of much - whether you are happy or sad or fearful,
patient or impatient, full of love and desire,
or if you are just doing your duty by me.
I marvel at your frustration, knowing mine to be far greater,
for I cannot express myself or my needs as you do.

You cannot conceive my isolation, so complete it is at times.
I do not gift you with clever conversation, cute remarks to be laughed over and repeated.
I do not give you answers to your everyday questions, responses over my well-being, sharing my needs, or comments about the world about me.
I do not give you rewards as defined by the world's standards -
great strides in development that you can credit yourself.
I do not give you understanding as you know it.

What I give you is so much more valuable - I give you instead opportunities.
Opportunities to discover the depth of your character, not mine;
the depth of your love, your commitment, your patience, your abilities;
the opportunity to explore your spirit more deeply than you imagined possible.
I drive you further than you would ever go on your own,
working harder, seeking answers to your many questions with no answers.
I am the child who cannot talk.

I am the child who cannot walk.
The world seems to pass me by.
You see the longing in my eyes to get out of this chair,
to run and play like other children.
There is much you take for granted.
I want the toys on the shelf, I need to go to the bathroom, oh I've dropped my fork again.
I am dependant on you in these ways.
My gift to you is to make you more aware of your great fortune,
your healthy back and legs, your ability to do for yourself.
Sometimes people appear not to notice me; I always notice them.
I feel not so much envy as desire, desire to stand upright,
to put one foot in front of the other, to be independent.
I give you awareness.
I am the child who cannot walk.

I am the child who is mentally impaired.
I don't learn easily, if you judge me by the world's measuring stick,
what I do know is infinite joy in simple things.
I am not burdened as you are with the strifes and conflicts of a more complicated life.
My gift to you is to grant you the freedom to enjoy things as a child,
to teach you how much your arms around me mean,
to give you love.
I give you the gift of simplicity.
I am the child who is mentally impaired.

I am the disabled child.
I am your teacher.
If you allow me, I will teach you what is really important in life.
I will give you and teach you unconditional love.
I gift you with my innocent trust, my dependency upon you.
I teach you about how precious this life is and about not taking things for granted.
I teach you about forgetting your own needs and desires and dreams.
I teach you giving.
Most of all I teach you hope and faith.
I am the disabled child.

- Author Unknown



I have been blessed by knowing and being a part of many of these childrens's lives. These past few months I have been on a journey with one in particular. She has thought to keep the faith. That when someone says I don't know what we are going to do or shakes their head and says we have few options left you stand firm on the word of God and let Him show the way. There are always more options, some that are unknown to unknow to us. That being on the top of the neurologist list is not really a bad thing, that trying something hair brianed may be a good thing. Don't let someone tell you that you can't do that or they will never learn that for they do not always have the answers. one of these children has learned to show love. She seeks out hugs and kisses, she hugs back and blows kisses. She looks with love in her heart into my eyes. She plays with her dolls and pretends to clean, she washes her face and hands with a cloth. She can throw a ball, she can swing in her swing by herself. Now you may think so what well let me tell you 1 and half years ago this child was labeled profoundly autistic, she was not aware that others were in a room. she paced in the same pace over and over all day stiming on a rattle. Today she seeks out and gives me hugs. God is Good.

1 comments:

Colleen said...

Thanks for stopping by and telling me about IVIG. I have heard some others that have this treatment. I had wondered about asking for my own daughter(not my stepdaughter) as she had some uncontrollable seizures. We finally found a med or combo that works for her using felbatol. I have told my stepdaughters mom about this med, but that I didnt think they would recommend it for her as she is a teen and that it can cause sickle cell anemia in teen girls. My daughter is younger so they risks were much less. I will pass the info of the IVIG on to her, as this might be something to look into for her(or even my daughter).